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April is Autism Acceptance Month: Supporting Neurodiversity and the Whole Person

Autism Acceptance Month celebrates the unique strengths of individuals with autism spectrum disorder (ASD) while promoting understanding and support for their needs. ASD affects 1 in 36 children and an estimated five million adults in the U.S. Many face co-occurring mental and physical conditions, requiring holistic care to support their overall wellbeing.

Why acceptance matters

Acceptance creates opportunities and builds a sense of belonging. When individuals with autism are accepted and supported:

  • Early intervention becomes possible. Diagnosing autism early enables access to therapies, such as Applied Behavior Analysis (ABA), that improve communication and social skills, promoting independence and meaningful connections.
  • Barriers are broken down. Approximately 85% of adults with autism are unemployed or underemployed. Increased awareness and support can help overcome challenges in education, employment and healthcare, creating opportunities for inclusion and success.

Why co-occurring conditions matter

Co-occurring conditions often significantly impact the lives of individuals with ASD.

  • Physical health conditions, such as gastrointestinal issues, epilepsy and sleep disorders, affect approximately 50 – 70% of children with ASD.
  • Mental health conditions, like anxiety, depression and attention-deficit hyperactivity disorder (ADHD), impact up to 80% of adults with ASD.

Addressing these co-occurring conditions in tandem with ASD improves quality of life, strengthens relationships and promotes greater independence.

How you can make a difference

  • Learn: Educate yourself about autism and co-occurring conditions.
  • Advocate: Promote participation in schools, workplaces and communities.
  • Amplify: Celebrate the strengths and perspectives of individuals with ASD.

Together, we can create a world that embraces neurodiversity, fosters acceptance and empowers individuals with ASD to thrive.

Visit MagellanHealthcare.com/Autism-Resources for more information and helpful resources.




Spotlight Magellan Health: Cara Albanese

With the start of Autism Acceptance Month in April, Senior Manager of Clinical Care Services Cara Albanese is focused on creating innovative and inclusive ways to better serve the needs of individuals with autism spectrum disorder (ASD). Albanese, who has been with Magellan for over six years, oversees the Applied Behavioral Analysis (ABA) operations in the California markets, including ABA Services for some commercial accounts. As manager of a team of eight employees, Albanese and her team review treatment plans and work directly with ABA providers to ensure adherence to the main objectives for their membership and that treatments align with the Magellan Health standards that provide members with the best care possible. Continue reading to learn more about what innovative programs and new initiatives for individuals with ASD Albanese is working on:

 

What sort of projects are you currently working on?

We started piloting a value-based model for ABA in October in our California market. Magellan is pioneering this type of program for ABA services. Now we are working on evaluating the findings to establish evidence-based practices and drive outcomes-based programs across the ABA industry. Implementing this program will allow us to evaluate treatment planning and delivery to continuously improve care for children with ASD and help the families who care for them.

What are your thoughts on the culture here at Magellan? How does that culture make Magellan the best place to do these innovative projects?

Magellan has a very strong culture of innovation and values our members’ satisfaction. We’re always looking to grow the field and improve data-driven outcomes for our membership. At Magellan, we continue to expand our knowledge and look at autism services across the industry as we continue the growth of our department. We work with a multidisciplinary team giving us insights from a variety of medical professionals. Being able to work with a variety of medical professionals ensures that our members are receiving the best care, as we can provide a holistic and prudent approach to care. Our clinical leadership at Magellan creates a supportive and collaborative environment to think outside the box and increase innovative thinking.

What does Autism Awareness and Acceptance Month mean to you?

The prevalence of autism has continued to rise to a rate of one in 36 children in the United States. Most individuals know someone who has autism or some experience with someone diagnosed with autism. This increased awareness allows us to start to support this population as a community. We can do this as clinicians by modifying and changing the science around ABA to support the current needs of the ASD population and their families. We can continue to increase inclusivity of children and adults with ASD, as they may learn and engage differently. Everyone should be embraced for their individual abilities.




From autism awareness to acceptance

Autism spectrum disorder (ASD) is a group of neurological conditions that affect brain development and can lead to challenges with social skills, language and communication, learning and behavior. In the United States, 1 in 44 children is diagnosed with ASD, and two percent of adults are estimated to have ASD.

Autism Awareness Month

Autism Awareness Month, observed annually in April, evolved from the Autism Society of America’s first National Autistic Children’s Week in 1972 and the United Nation’s official observance of World Autism Awareness Day on April 2, which highlight the need to improve the quality of life of those with ASD so they can lead full and meaningful lives and be an integral part of society.

How does autism awareness help individuals with ASD?

Autism awareness is knowing an individual has ASD and recognizing the signs and symptoms, such as social communication challenges, restricted interests and repetitive behaviors. Awareness can lead to acceptance and help with:

  • Improved inclusion for people with autism
  • Decreased bullying and exclusion
  • Greater support in schools, at home, etc.
  • A better understanding of ASD in communities
  • Better integration of people with ASD into communities, jobs, etc.

Autism Acceptance Month

Today, Autism Awareness Month has evolved into Autism Acceptance Month. Organized by Paula C. Durbin-Westby, an autistic disability rights activist, Autism Acceptance Day was first observed on April 1, 2011 as a way to counteract negative images of autism prevalent in many autism “awareness” media pieces. Autism Acceptance Day and Autism Acceptance Month quickly became popular in the autistic community. In 2021, the Autism Society formally adopted the name Autism Acceptance Month to foster acceptance and ignite positive change in the lives of those with autism and their families.

How does autism acceptance help individuals with ASD?

Autism acceptance means moving past surface impressions; including individuals with ASD in your activities; and helping them to develop and thrive in the community, and connect with others.
With acceptance from others, individuals with ASD have an easier time navigating life’s everyday challenges without the stress of being judged and ridiculed. Autism acceptance can provide individuals who have ASD:

  • Adequate validation of their condition and emotions
  • Improved self-acceptance, confidence, and mental health
  • Better relationships with peers
  • Increased quality of everyday life

This increased sense of self-acceptance and compassion will give individuals with autism more confidence to interact openly with peers, take part in group activities and try new things.

How can I practice autism acceptance and inclusion?

We can all take actionable steps that encourage acceptance and inclusion of individuals with ASD in our communities.

  • Diversify your child’s bookshelf. Select books with characters of varying abilities, such as ASD. Reading is an excellent way to engage your child in conversations about acceptance and inclusion of differences from a very young age. Three books that focus specifically on ASD are:
    • A Friend for Henry by Jenn Bailey–This heartfelt story from the perspective of a boy on the autism spectrum who is on the lookout for a friend who shares, listens, and maybe even likes things to stay the same and all in order, as he does, celebrates the everyday magic of friendship with insight and warmth.
    • A Friend Like Simon by Kate Gaynor–This story is about an autistic child who joins a “typical” classroom and faces many challenges. Young readers will learn how to be mindful of and patient with their autistic peers, while also learning about the many ways an autistic child can contribute to a friendship and community.
    • All My Stripes: A Story for Children with Autism by Shaina Rudolph and Danielle Royer–Zane the zebra has autism, and he is worried that his friends and classmates will make fun of his stripes, which make him different. As Zane learns having autism is one of the many things that actually makes him special, your child will relate to Zane and realize they, too, have plenty to be proud of.
  • Expand your circle. Expanding your family’s network of friendships and activities to include individuals with different abilities, such as ASD, can provide opportunities for all to connect with and learn from others.
  • Focus on strengths, not just challenges. Many individuals with ASD exhibit highly focused interests, such as technology or animals. Inviting them to participate in activities or groups that involve their interests creates pathways for individuals with ASD to form friendships. Focusing on the unique abilities of individuals with ASD strengthens their sense of self and achievement.

How can I learn more about ASD?

You can find free resources that increase awareness, celebrate differences and support inclusion on our Autism Awareness website, including a recording of the Magellan Healthcare and Kyo webinar, “What is Applied Behavior Analysis (ABA) and how can it help my family?”

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